Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Front Matter....Pages i-lx
Front Matter....Pages 1-3
Introduction to Intellectual and Developmental Disabilities....Pages 5-12
Front Matter....Pages 13-13
Health Is More than Medicine....Pages 15-29
Front Matter....Pages 31-31
History of Health Care for People with Intellectual and Developmental Disability....Pages 33-46
Front Matter....Pages 47-47
Family Centered Care in a Health Care Setting....Pages 49-58
Siblings of Children and Adults with Intellectual and Developmental Disability....Pages 59-67
Grandparents as Caregivers for Grandchildren with Intellectual and Developmental Disabilities....Pages 69-77
Aging Parents....Pages 79-84
The Rights of Individuals with Disability to Parenthood....Pages 85-101
Foster Care....Pages 103-110
Transitioning Youth to Adult Health Care: A Person-Centered and Culturally Competent Approach....Pages 111-119
Front Matter....Pages 121-121
Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities Across the Lifespan....Pages 123-134
Front Matter....Pages 135-135
International Classification of Function....Pages 137-146
Front Matter....Pages 147-147
Clinical Settings for Health Care Delivery....Pages 149-154
Reaching the Unserved and Underserved: Medical Care in Rural and Urban Settings....Pages 155-168
International Perspectives on the Delivery of Health Care....Pages 169-176
Healthcare Financing....Pages 177-183
Systems of Health Care Delivery: Community Setting....Pages 185-194
Models of Care for Children with Medical Complexity....Pages 195-208
School Settings....Pages 209-217
Health Care Transition....Pages 219-228
Front Matter....Pages 147-147
Community Healthcare....Pages 229-241
Nursing Home Setting....Pages 243-254
Current and Emerging Trends for Residential Supports for Persons with Intellectual and Developmental Disabilities and the Impact of Managed Care Initiatives....Pages 255-263
Large Residential Care Facilities....Pages 265-275
Community Nursing....Pages 277-287
Medical Home....Pages 289-300
Front Matter....Pages 301-301
Principles of Care and Ethics....Pages 303-310
Front Matter....Pages 311-311
Practicalities of Care for Adults with Intellectual and Developmental Disabilities....Pages 313-334
Electronic Medical Records....Pages 335-343
Front Matter....Pages 345-345
The Environment....Pages 347-361
Fetal Environment and Risks for Intellectual and Developmental Disabilities....Pages 363-370
Front Matter....Pages 371-371
Built Environments for Improving Human Development and Promoting Health and Quality of Life....Pages 373-391
Front Matter....Pages 393-393
Public Health Perspectives on Intellectual and Developmental Disabilities....Pages 395-409
Front Matter....Pages 411-411
Systems of Delivery of Health Care for Persons with Developmental Disabilities: The Case of Belgium....Pages 413-417
Services for People with Intellectual Disability in the United Kingdom....Pages 419-428
People with Developmental Disabilities in the United States of America....Pages 429-438
Former Soviet Countries....Pages 439-451
Health and Social Services for People with Intellectual and Developmental Disabilities in Taiwan....Pages 453-459
Intellectual Disability in India: Recent Trends in Care and Services....Pages 461-470
Services for People with Intellectual and Developmental Disabilities in Hong Kong....Pages 471-481
Front Matter....Pages 411-411
International Perspectives: Israel....Pages 483-492
Canada....Pages 493-503
Organization of Services and Life-Long Health Care: Japan....Pages 505-508
Special-Needs Education, Special Care, and Education for Physicians in Finland....Pages 509-516
South America. A Service Example from Lima, Peru....Pages 517-528
Analysis of Service and Legislative Frameworks in Turkey across the Lifespan....Pages 529-535
Service Organization and Support for People with Intellectual and Developmental Disabilities in the Netherlands....Pages 537-544
International Perspectives: Chile....Pages 545-554
Services for Persons with Intellectual and Developmental Disabilities in Italy....Pages 555-561
Denmark. A Historic Journey....Pages 563-569
Service and Care in Australia....Pages 571-579
Africa....Pages 581-590
Front Matter....Pages 591-593
Developmental and Functional Evaluation and Assessment....Pages 595-616
Front Matter....Pages 617-617
Communication with Patients, Parents and Other Caregivers....Pages 619-628
Front Matter....Pages 629-629
Newborn Screening....Pages 631-640
The Mucopolysaccharidoses....Pages 641-657
The Sphingolipidoses....Pages 659-682
Mitochondrial Disorders....Pages 683-700
Front Matter....Pages 701-701
What Is New in Genetics and Genomics?....Pages 703-712
Autism and Genetics....Pages 713-721
Front Matter....Pages 701-701
22q11.2 Deletion Syndrome: A Paradigmatic Copy-Number-Variant (CNV) Disorder....Pages 723-730
Genetic Counseling....Pages 731-736
Front Matter....Pages 737-737
Down Syndrome....Pages 739-750
Fragile X Syndrome....Pages 751-764
Rett Syndrome: Seeing the Way Forward....Pages 765-777
Prader-Willi Syndrome....Pages 779-798
Williams Syndrome....Pages 799-814
Angelman Syndrome....Pages 815-819
Smith-Magenis Syndrome....Pages 821-825
Noonan Syndrome....Pages 827-832
Phakomatoses....Pages 833-845
Spina Bifida....Pages 847-872
Fetal Alcohol Syndrome....Pages 873-880
Front Matter....Pages 881-881
Other Syndromes: Lowe Syndrome....Pages 883-885
Other Syndromes: Nager Syndrome....Pages 887-889
Other Syndromes: Sturge-Weber Syndrome....Pages 891-894
Klinefelter Syndrome....Pages 895-902
Cornelia de Lange Syndrome....Pages 903-912
Front Matter....Pages 913-913
Prematurity and Its Consequences....Pages 915-928
Front Matter....Pages 929-929
Cerebral Palsy....Pages 931-948
Front Matter....Pages 949-949
Congenital Anomalies of the Central Nervous System....Pages 951-961
Epilepsy....Pages 963-977
Sleep Disorders....Pages 979-984
Movement Disorders....Pages 985-994
Dementia and Alzheimer’s Disease....Pages 995-1011
Peripheral Nerve Disorders....Pages 1013-1014
Front Matter....Pages 1015-1015
Pediatric Aspects of Physiatry and Function....Pages 1017-1025
Physiatry and Function: Common Issues in Adults with Intellectual and Developmental Disabilities....Pages 1027-1035
Front Matter....Pages 1037-1037
Allied Health Professionals....Pages 1039-1051
Occupational Therapy....Pages 1053-1067
Physical Therapy....Pages 1069-1076
Speech Language Pathology: Supports to Communication....Pages 1077-1084
Front Matter....Pages 1085-1085
Health Promotion....Pages 1087-1103
Front Matter....Pages 1105-1105
Orthopaedic Considerations....Pages 1107-1122
Front Matter....Pages 1123-1123
Dermatology....Pages 1125-1148
Front Matter....Pages 1149-1149
Eye and Vision Care....Pages 1151-1162
Front Matter....Pages 1163-1163
Dentistry....Pages 1165-1175
Front Matter....Pages 1177-1177
Hearing Impairment....Pages 1179-1196
Otolaryngology....Pages 1197-1205
Front Matter....Pages 1207-1207
Gastrointestinal Issues....Pages 1209-1224
Front Matter....Pages 1207-1207
Nutrition....Pages 1225-1238
Feeding Aspects....Pages 1239-1254
Front Matter....Pages 1255-1255
Endocrine Issues....Pages 1257-1279
Front Matter....Pages 1281-1281
Urological Concerns....Pages 1283-1298
Front Matter....Pages 1299-1299
Congenital Heart Disease and Down Syndrome....Pages 1301-1310
Congenital Heart Disease....Pages 1311-1321
Front Matter....Pages 1323-1323
Pulmonology and Sleep Disordered Breathing....Pages 1325-1346
Front Matter....Pages 1347-1347
Women’s Health....Pages 1349-1358
Men and Their Health....Pages 1359-1364
Sexuality....Pages 1365-1381
Front Matter....Pages 1383-1383
Cancer and Oncology....Pages 1385-1391
Front Matter....Pages 1393-1393
Care of People with Severe and Profound Intellectual and Developmental Disabilities....Pages 1395-1400
Psychological Well-Being of Children and Adults with Severe and Profound Intellectual and Developmental Disabilities....Pages 1401-1419
Front Matter....Pages 1421-1421
Aging: Demographics, Trajectories and Health System Issues....Pages 1423-1432
Optimizing Health While Aging with Developmental Disabilities....Pages 1433-1448
Dementia: Screening, Evaluation, Diagnosis and Management....Pages 1449-1463
Assistive Technology and Older Adults....Pages 1465-1471
Sarcopenia: Facts and Challenges....Pages 1473-1477
Front Matter....Pages 1479-1479
Introduction to Mental Health and Behavior....Pages 1481-1487
Psychiatric Assessment....Pages 1489-1496
Front Matter....Pages 1479-1479
Autism Spectrum Disorder....Pages 1497-1528
Attention Deficit Hyperactivity Disorder....Pages 1529-1542
Mood Disorders: Depression and Bipolar Disorder....Pages 1543-1558
Anxiety: Challenges of Normal and Abnormal Responses....Pages 1559-1571
Behavior Approach to Management of Aggression, Self-Injurious Behavior, and Pica....Pages 1573-1583
Basic Psychopharmacology....Pages 1585-1600
Integrated Psychopharmacological Management....Pages 1601-1615
Psychosis....Pages 1617-1628
Diagnostic, Treatment and Service Considerations to Address Challenging Behavior: A Model Program for Integrated Service Delivery....Pages 1629-1644
Working with Children and Working with Schools....Pages 1645-1654
Inpatient Psychiatric Care....Pages 1655-1676
Multidisciplinary Assessment....Pages 1677-1698
Integration of Mental and Behavioral Health in Primary Care....Pages 1699-1707
Front Matter....Pages 1709-1709
Infectious Diseases, Immunizations and Universal Precautions....Pages 1711-1728
Front Matter....Pages 1729-1729
Intensive Care....Pages 1731-1743
Front Matter....Pages 1745-1745
Adoption....Pages 1747-1758
Front Matter....Pages 1759-1759
Emergency Care....Pages 1761-1780
Front Matter....Pages 1781-1781
Community-Based Primary Health Care for Adults....Pages 1783-1793
An E-Toolkit for Primary Health Care of Adults....Pages 1795-1799
Front Matter....Pages 1801-1801
The Professional Nursing Role in Support of People with Intellectual and Developmental Disabilities....Pages 1803-1821
Front Matter....Pages 1823-1823
Principles of Pharmacology....Pages 1825-1842
Front Matter....Pages 1843-1843
Podiatry....Pages 1845-1865
Front Matter....Pages 1867-1867
Pain....Pages 1869-1881
Front Matter....Pages 1883-1883
Anesthesia in Children....Pages 1885-1894
Front Matter....Pages 1895-1895
End-of-Life Care....Pages 1897-1908
Front Matter....Pages 1909-1911
Assessing Health and Quality of Care....Pages 1913-1918
Social Determinants of Health....Pages 1919-1932
Front Matter....Pages 1933-1933
Concepts of Holistic Care....Pages 1935-1941
Integrative Medicine....Pages 1943-1965
Front Matter....Pages 1967-1967
Guardianship and Alternatives: Decision-Making Options....Pages 1969-1980
Front Matter....Pages 1981-1981
The Importance of Inclusive Participation in Securing Quality Healthcare Throughout the Lifespan of Persons with Intellectual and Developmental Disabilities: Personal Perspectives....Pages 1983-1993
Ideal Requirements for the System of the Future: Self-Determination....Pages 1995-2008
Front Matter....Pages 2009-2009
Abuse and Neglect....Pages 2011-2032
Front Matter....Pages 2033-2033
Healthcare Utilization and Costs for Individuals with Disabilities....Pages 2035-2052
Front Matter....Pages 2053-2053
Trends in Using Technology to Achieve Better Health Outcomes....Pages 2055-2062
Front Matter....Pages 2063-2063
Family Quality of Life....Pages 2065-2082
Front Matter....Pages 2083-2083
Physicians....Pages 2085-2096
Nursing Education About People with Intellectual Disability. An International Perspective....Pages 2097-2109
Other Health Professions....Pages 2111-2123
What Undergraduate and Graduate Students Should Know About Disability....Pages 2125-2131
Front Matter....Pages 2083-2083
Continuing Education for Health Care Providers....Pages 2133-2140
Interdisciplinary Training....Pages 2141-2147
Front Matter....Pages 2149-2149
Barriers to Care....Pages 2151-2162
Front Matter....Pages 2163-2163
Coping with Caregiver Stress....Pages 2165-2183
Front Matter....Pages 2185-2185
Special Olympics....Pages 2187-2195
Front Matter....Pages 2197-2199
Research Aspects....Pages 2201-2211
Health Research in Intellectual and Developmental Disabilities....Pages 2213-2223
Clinical Trials....Pages 2225-2231
Front Matter....Pages 2233-2235
Disaster Planning and Response with and for People with Disabilities....Pages 2237-2246
Front Matter....Pages 2247-2249
A Healthy Dose of Laughter and the Arts: The Role(s) of Play, Laughter and the Arts in Promoting Good Health and Maintaining Quality of Life....Pages 2251-2262
Front Matter....Pages 2263-2265
Health and the UN Convention on the Rights of Persons with Disabilities....Pages 2267-2288
Front Matter....Pages 2289-2291
A Glimpse into the Future....Pages 2293-2302
Back Matter....Pages 2303-2307